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Family-to-Family Health Information Center
The MA Family-to-Family Health Information Center, a project of Mass Family Voices, is funded under Grant Award #H84MC08005 from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs. This funding was made available through the Patient Protection and Affordable Care Act (ACA). This Center is staffed by parents. We provide free, confidental assistance to families raising children and youth with special health needs, professionals, and others. Contact us at 1-800-331-0688, ext. 301, or massfv@fcsn.org for information about:
  • Health Care Financing
  • Medical Home
  • Early & Periodic Screening
  • Navigating Community Services
  • Transition to adult systems of care
  • Family/Professional Partnerships
Learn more about the MA F2F HIC.

Massachusetts
Family Voices
Mass Family Voices @ Federation for Children with Special Needs is a parent-run, state affiliate organization of Family Voices, a national grassroots network of families, friends, and professional partners working to keep families at the center of children's health care.

 

Joing Voices 2012 Heart Logo

REGISTRATION FOR THIS YEAR'S JOINING VOICES CONFERENCE IS NOW CLOSED. WE HAVE REACHED CAPACITY..

heart graphicSTAFF

heart graphicSenior Health Policy Analyst: Barbara Popper, MEd
heart graphicHealth Info Specialist: Cathy Hickey, MEd
heart graphicHealth Info Specialist-Latina Community: Marilyn Gutierrez
heart graphicProgram Associate/Family Leader: Cristin Lind

 

heart graphicJoin our Mass Family Voices moderated listserv

This is a statewide forum for families and providers who are working to improve the lives of children and youth with special health needs. Our list members share ideas, offer solutions, find new resources, and learn about events, meetings and conferences!Subscribe: massfamilyvoices-subscribe@yahoogroups.com

heart graphicHISTORY:

Mass Family Voices, a project of the Federation for Children with Special Needs, began as a volunteer effort in 2000 and has continued with funding from federal and state agencies. The early efforts focused on access to health care insurance, shaping health policy that promoted health and wellness for children and youth with special health care needs. We continue to work on these areas as well as new ones, emphasizing innovative practices and collective empowerment.

heart graphicPROJECTS:

Family to Family Health Information Center (F2F)

  • Federal Grant: HRSA/MCHB, (#6 H84MC08005-03-03), 2011-2013.
  • Areas of focus: Accessing Health Care (MassHealth and private), Medical Home, Health Care Transition and Medical and Other Evidence Documentation.

We are part of a federal initiative which funded F2Fs in every state, providing information and education on health issues for children and youth with special health care needs (CYSHCN) http://www.hrsa.gov/about/news/pressreleases/110517familytofamily.html.

Mass. CHIPRA quality demonstration grant: Authentic Family-Professional Partnerships

  • Subcontract: Boston Children's Hospital, 2010-2014.
  • Areas of focus: Medical Home Collaborative - Family Partnerships, Family Advisory Council, Patient and Family Centered Care

Massachusetts' Children's Health Insurance Program Reauthorization Act (CHIPRA) Quality Demonstration Grant (federal CMS) is led by five partners: MassHealth, Children's Hospital Boston, Massachusetts Health Quality Partners, National Initiative for Children's Healthcare Quality, and University of Massachusetts Medical School.